Holding on to a sense of humor in the face of illness
For years, the fact that I fell asleep all the time was a joke. There are so many photographs floating around of me asleep on …
The dangers of joy: Is my cataplexy getting worse or am I just happy now?
Last weekend, my boyfriend had to drag me to bed- literally. I had lost the ability to stand on my own. In fact, I had …
Code Z! Learning to accept naps as a part of life
“Code Z!” This is the term my partner and I came up with to indicate when I could feel the brain fog setting in. It’s …