It’s Time for the 2023 Sleep In!
The 2023 Sleep In fundraiser for Project Sleep is already upon us! I have to admit, deciding whether to participate this year was difficult for …
Narcolepsy
My First In-Person Rising Voices Presentation is at BROWN
Today I had the opportunity to share my Rising Voices of Narcolepsy presentation in person for the first time. My amazing sleep specialist, Dr. Katie …
Sharing My Story Through Project Sleep
Every so often, life gives you the opportunity to bring things full circle, to tie together the various plot points into a tidy narrative. This …
One Week Until Sleep In 2022
It’s one week until this year’s Sleep In! I wanted to take this moment to extend a heartfelt thank you to everyone who has shown …
Graduating the Rising Voices of Narcolepsy Program
Last summer, I was accepted into the 2021 Rising Voices of Narcolepsy program. Deciding to speak up In October 2020, when I first decided to …
Sleep like your diagnosis depends on it – looking back on my sleep study a year later
One year ago, I was sitting in a stark hallway clutching my pillow and a cooler full of snacks, waiting for 8pm to hit so …
Tracking your symptoms to improve your life
Let’s be frank. I’m a serial tracker. I’m a huge fan of spreadsheets, to-do lists, tracking apps, and printing out cute sheets to fill in. …
Sleep In 2021!
I’ll be participating in this year’s Sleep In 2021! March 12 – 14, 2021, Project Sleep will be hosting their 7th Annual Sleep In to …
Holding on to a sense of humor in the face of illness
For years, the fact that I fell asleep all the time was a joke. There are so many photographs floating around of me asleep on …
The dangers of joy: Is my cataplexy getting worse or am I just happy now?
Last weekend, my boyfriend had to drag me to bed- literally. I had lost the ability to stand on my own. In fact, I had …